Living With Crohns

I have a scar from emergency surgery across my stomach that turns 13 next month. This photo turned 3 today…

Crohns sucks.
You present well, you look healthy,
But your heart clutches and your bones ache…
you can’t sleep
And sometimes you’re up and sometimes you’re down…

But isn’t that life?
1 resection
Countless scopes
3different medicines
3 NG tubes
Countless weeks in different hospitals

I’m not sure what to tell you…
It’s different for everyone
And that is part of your uniqueness
It’s still your story

After this photo a few months later, I spent a week in a hospital with an NG tube in Birmingham.

Hang in there
I know this year is difficult, especially mentally, we are broadcasting reminders everywhere that we are in a pandemic and people are dying and the world is burning and

and

and

in case you forgot

and

and

and …

And You

You matter
Your pain matters
Your love matters
You, your story
Your heartache
Your lonely
Your passion
Your health
I piece myself together bit by bit cuff links and ties
Bourbon and poetry

I write letters
I send flowers
I cook
I take 20 minute naps
And
I listen to jazz and Sinatra and the blues …

Take time for you…
You’re still here.

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